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End the anomaly of the post code lottery and access to life saving drugs

“This Association in Conference assembled urges Her Majesty’s Government to end the anomaly of the post code lottery whereby certain life-saving drugs are withheld in some areas because of the cost to the local trust.”

East Herts Association,

2014

The NHS is not getting sufficient money to give us all what we want, but some cases are lucky and others are not. The reason is usually because of where they live. This cannot be right. We live in a country where everyone is equal until it comes to NHS treatment.

The so called ‘post code lottery’ is probably something which is endemic. The amount of money allocated to a Trust, the age of the population of that area, as much as mainly elderly. It would be a difficult decision to have to make but surely for the person involved there is no problem. As each of the following would surely say:

– If you are comparatively young and hoping for a family, the IVF treatment is a must.
– If you are comparatively young and hoping for a family and have breast cancer, life-saving treatment is a must.
– If you have suffered with an arthritic hip for years an operation is a must.
– If you have dementia and can’t look after yourself, help is a must.

Some people are given these treatments but others not, depending on where they live.

A headline in a daily paper “postcode lottery is killing 6,000 cancer patients every year”. Very dramatic but not true, it is not the postcode that is killing patients but that some patients are not receiving the same treatment as others. Cancer is individual to the person involved and treatment could be different in some patients to others, but our treatment should be the best possible available at the time. If you are elderly it could be said that you have had your life and possibly you should stand aside for treatment to be given for a younger person, but this should not be an issue, while there is a chance of good quality of life, treatment should always be offered regardless of the cost and where you live. However, if you are in a postcode that restricts treatment it could mean the difference between life or death and everyone should have the same chance of living.

Reply from:- Dept of Health-Ministerial Correspondence and Public Enquiries Unit
The National Institute of Health and Care Excellence’s (NICE) technology appraisal programme provides evidence-based guidance on the clinical and cost effectiveness of drugs and other health technologies. There is a legal requirement on the NHS to provide funding for treatments and drugs recommended by NICE technology appraisal guidance within three months of final guidance being published.  If NICE has not made a decision about a drug it is the responsibility of the NHS locally to decide whether to commission it or not. The Dept of Health has made it clear that it is not acceptable for the funding for treatments to be withheld simply because NICE has not yet published final guidance on them.  Where a drug or treatment has not been appraised by NICE or where negative guidance has been issued, funding decisions should be made by the relevant NHS commissioner, based on an assessment of the available evidence and on the individual patient’s clinical circumstances. The NHS Constitution states that patients have the right to expect local decisions on the funding of drugs and treatments to be made rationally following a proper consideration of the evidence. If a commissioner decides not to fund a drug, then it should explain that decision. The Constitution right is supported by regulations that set out the legal requirements with which commissions must comply when making commissioning decisions.  If a patient’s local clinical commissioning group or NHS decides, on the basis of rational, proper consideration of the evidence, that a treatment should not be provided that the patient and their doctor have requested, patients must be provided with the reasons for that decision in writing. NHS commissioners are required to have clear and transparent arrangements for local decisions making on funding of treatments and for considering exceptional funding requests.  Guidance can be accessed on the National Prescribing Centre legacy website at www.npc.nhs.uk.

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December Update

2020 is a year none of us will forget in a hurry but as it draws to a close we would like to update you with the current situation as far as Head Office is concerned. The office is now closed until after Christmas but Claire, our secretary, is working from home.

It has been a very strange year with no events, no clubs, no getting together. All our events had to be cancelled, and though we are no different to any other organisation it has been such a pity because this is what we are about friendship, education and fun. On the positive side we have worked hard getting out letters to as many members as we could with the help of club officials. They have been brilliant keeping in touch with their members through emails, ‘WhatsApp’ and phone calls they all deserve a star!

With the moving into different tiers it sometimes gets very confusing and loneliness has been talked about a lot on the television and the media but we hope through the clubs this has not affected our members too much. With the hope of a vaccine it might not be too long before we are back and enjoying our club life again and remember after December 21st the days start to get longer and Spring will be around the corner.

Here at Head Office Eleanor retired at the end of September, Eleanor had told us of her plans at the beginning of the year so we had plenty of notice but of course we could not have the retirement party she was entitled to. However, we are hoping she will come to conference next year and we can say farewell properly. We did send flowers on the day and Mary, our treasurer made her a collage of all our good wishes, and it was beautiful.

If you are looking at our website for the first time look at the list of clubs and see if we have one near you, they are friendly places to go to. Most meet once a week with speakers, demonstrations and outings. Each club is different and if there isn’t one in your area, why don’t you start one!  We honestly think our sort of club is just what the women of our country needs right now.  We are a non-political, non-religious and non- sectarian group that offers friendship and interest. Take a look at this website and see what we have to offer.

So Christmas is coming and what a difference to the one we probably envisaged, but remember ladies we might not be able to party as we have in the past but if we keep safe we can celebrate next year with family and friends. 

So on behalf of The Committee to all our members and whoever is looking at this website, we wish you all a Merry Christmas, keep well and let’s look forward to a better New Year.